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One of the most difficult things that may happen for all patients with ESRD is
the change in life-style that results from the disease and its
treatment.
Most patients with a chronic illness become depressed. There
is always a feeling of "why me!". Not only is the patient affected, but the
whole family may have a difficult time adjusting to the illness and its
treatment. To add to this, is the burden of heavy expenditure that this form of
treatment requires.
It is important to ask for help if one has difficulty
in adjusting to the changes that occur. One should never be reluctant in asking
for help in dealing with some of the emotional stresses of illness. It is not
always possible to deal with the depression or anger only within the
family.
There appear to be 3 stages in adjusting to dialysis treatment :
The first stage is known as a "honeymoon period". This occurs shortly
after dialysis is started. Many of the symptoms of ESRD are relieved and patient
feels much better. This may last for a few weeks.
The second stage is
discouragement and a feeling of hopelessness about the disease and its form of
treatment. It is at this stage that the financial burden is felt most heavy. One
might become irritable at home and angry at the dialysis machine.
The
third stage is a period of adaptation. During this period one learns to accept
the limitations of conservative treatment and adjust to the dialytic treatment.
One of the common problem that occurs in patients with ESRD is a decrease in
sexual interest and in function. This occurs in both males and females.
Travel :
Many patients are concerned that if they are on dialysis, they will not be able
to travel. Currently, in our country, most major cities have dialysis units. It
is always possible to arrange for dialysis at other center during travel.
However, it is important to plan a trip in advance so that one can be assured
that the center does accept visitors. It also helps doctors to prepare the
details of medical history, investigations and treatment for the dialysis center
that one would be visiting. For those who are on CAPD, they could carry their
dialysis bags or buy them from the city they are visiting.
Patient responsibilities :
For a smooth functioning of the dialysis unit and for better treatment, one has
to shoulder certain responsibilities.
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One must keep scheduled dialysis appointments.
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One must be considerate to other patients and nurses.
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One must co-operate with the dialysis personnel, by adhering to :
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Diet and fluid restrictions and
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Taking all prescribed medicines regularly.
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